My Etan is a handsome 5 year old boy. He is the  baby-brother of Leah (9) and  Ido (8).

Etan  had his first (noticeable) seizure at 5 months of age, and they were never really controlled ever since then. He is taking multiple medications for seizures and working hard with us family and an amazing team of care to push him to his fullest potential. Etan is working so hard to overcome his daily challenges,  and seemingly, he doesn't know that this isn't nearly a typical life for a child his age. Seeing him struggling every-minute and almost never complaining is my inspiration to work as hard as possible with him to get him a better quality of life and achieving my mission to find a treatment and hopefully a cure for his medical condition.