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our stories

Everyone Affected by SZT2 Has a Story.

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Some of our kids' seizures cluster more than once a week, while other seizures' are more controllable. Some have "tonic" seizures, some have "absence" seizures, other types or no seizures at all. Many start having seizures before they are a year or two old. Some gain seizure control with medication or as they get older, while others do not. Some children are also diagnosed with Autism Spectrum Disorder, and/or can exhibit behavioral and psychological challenges, while others are more "mentally and cognitively typical".

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What all of our amazing kids have in common is their strength and power to inspire us families and care-givers. They have been our inspiration since day one of diagnosis; seeing them struggling with the simple day to day activities of life and hardly ever complain is  beyond comprehension.

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Please take some time to get to know them through these pictures and the words of their loved ones.

Jaxon.jpg
Jaxon
Sacha -main
Sacha
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Linus
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